By Gerald Lynch
The Murdoch Children’s Research Institute has celebrated its 1000th patient to join the Victorian hip dysplasia registry (VicHip).
Launched in 2022, VicHip aims to improve hip care and outcomes for children and adults affected by this common condition.
On Wednesday, November 27, Williamstown parents Emily and Ryan Keohane, with their 16-month-old Eloise took part in a special event at Sunshine Hospital to celebrate the milestone.
Eloise, the star of the day, was blissfully unaware of her important contribution to medical research. Diagnosed with hip dysplasia at just four months old, Eloise’s story reflects the challenges faced by many families.
One in every 100 babies worldwide is affected by hip dysplasia, a condition where the hip joint does not develop normally.
This can lead to mobility issues, painful arthritis or surgery. Early diagnosis and treatment are crucial to prevent long-term problems.
Although Eloise showed no obvious signs or symptoms, a precautionary ultrasound – recommended due to Emily’s own history – revealed her hip dysplasia.
This early detection allowed Eloise to receive immediate treatment.
“I remembered feeling really upset for her because she had just started rolling over that morning,” Emily said.
“We had to figure out clothing and sleeping bags suitable for hip dysplasia.”
Eloise wore a brace for seven months. First, in a Denis Browne Bar and then in a Rhino brace, which she wore for 21 to 24 hours a day. This limited her mobility and precious cuddle time with her mum. “Breastfeeding wasn’t comfortable anymore,” Emily said.
“I wanted her to snuggle into me and enjoy the experience.”
The family made the decision to join VicHip to help other families like theirs.
Emily expressed heartfelt concern about children with no family history or obvious signs or symptoms.
“How would they (parents) know what to look for?” she questioned.
“I would encourage other parents to get involved … The researchers are lovely, and it was a really easy process to sign up.”
Details: vichip.org.au
